Global Down Syndrome Foundation

2011 National Institutes of Health Report Shows Down Syndrome Remains the Least Funded Genetic Condition

2012-02-23T16:36:00.000-07:00

http://report.nih.gov/rcdc/categories/ProjectSearch.aspx?FY=2011&ARRA=N&DCat=Down Syndrome

DOWN SYNDROME ORGANIZATIONS EXPRESS DISSAPOINTMENT IN FEDERAL FUNDING DECREASE FOR PEOPLE WITH DOWN SYNDROME

2012-02-22T12:00:00.002-07:00

Dear Colleagues and Friends ,
We are disappointed to let you know that the National Institutes of Health (NIH) funding levels for research supporting people with Down syndrome actually decreased from $22 million in 2010 to $20 million in 2011.

The good news is Global Down Syndrome Foundation and the two national organizations – National Down Syndrome Congress and National Down Syndrome Society – are clearly on the same page to use this to redouble JOINT efforts to significantly increase research and medical care funding for people with Down syndrome.

We are organizing a call to action and will keep you posted!

Best,

Michelle Sie Whitten

DOWN SYNDROME ORGANIZATIONS EXPRESS DISSAPOINTMENT IN FEDERAL FUNDING DECREASE FOR PEOPLE WITH DOWN SYNDROME

2011 National Institutes of Health Report Shows Down Syndrome Remains the Least Funded Genetic Condition

Denver, Atlanta, New York-- On Monday, February 13, 2012 the National Institutes of Health (NIH) published the fiscal year 2011 research funding for Down syndrome. The funding numbers decreased from $22 million in 2010 to $20 million in 2011 out of a total $31 billion budget. The 2010 funding levels already equated to Down syndrome being the least funded genetic condition by the NIH, something many Down syndrome organizations have been trying to reverse.

In a joint statement by the National Down Syndrome Congress, National Down Syndrome Society and Global Down Syndrome Foundation, the Down syndrome community expressed its disappointment in the decrease.

We are very disappointed the funding levels for research from the NIH have not increased, but in fact decreased. Prominent scientists believe the research for improving health and cognition is extremely promising.

The Down syndrome community feels strongly about better medical care and outcomes for people with Down syndrome. Mainstream Americans overwhelmingly support federal funding for Down syndrome, as evidenced by a 2011 poll.

While funding for other conditions such as Fragile X and Cystic Fibrosis increased, funding for Down syndrome at the National Institutes of Health is significantly less and has plummeted since 2000, as evidenced by numbers published by the NIH.

People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, childhood leukemia, thyroid conditions, and Alzheimer's disease. Researchers are studying proteins related to human chromosome 21 and Alzheimer’s disease that would reduce the level of the protein and lead to improvements in cognition for individuals with Down syndrome. While these groundbreaking developments, supported primarily by private funding, are positive achievements, both government funding and clinical research infrastructure support are vital to our efforts to translate research achievements into real treatments and therapies.

We hope given these realities that research funding benefiting the lives of people with Down syndrome will increase at the NIH. We are grateful for the funding that has been provided so far and will continue to collaborate with the NIH in meeting our collective goals for increased funding.

About the National Down Syndrome Congress

Founded in 1973, the National Down Syndrome Congress is the country’s oldest organization for people with Down syndrome, their families, and the professionals who work with them. A 501(c)(3) non-profit advocacy organization, the NDSC provides free technical support and information about issues related to Down syndrome throughout the lifespan, as well as on matters of public policy relating to disability rights. Best known for its annual convention – the largest of its type in the world – the National Down Syndrome Congress is a grassroots organization recognized for its “family” feel, its “We’re More Alike than Different” public awareness campaign, and, its outreach to individuals from diverse backgrounds.

About National Down Syndrome Society

The National Down Syndrome Society is a nonprofit organization with more than 350 affiliates nationwide representing the more than 400,000 Americans who have this genetic condition. NDSS is committed to being the national advocate for the value, acceptance, and inclusion of people with Down syndrome. We demonstrate this commitment through our advocacy and public awareness initiatives that benefit people with Down syndrome and their families.

About the Global Down Syndrome Foundation

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the US committed to research and medical care for people with the condition. Fundraising and government advocacy that corrects the alarming disparity of national funding for people with Down syndrome is a major short-term goal. The Foundation organizes the Be Beautiful Be Yourself Fashion Show - the single largest annual fundraiser benefitting people with Down syndrome. Programmatically the Foundation organizes and funds many programs and conferences including the Dare to Play Football and Cheer Camps, Global Down Syndrome Educational Series, and Global Down Syndrome Multi-Language Resource Project. The Foundation is an inclusive organization without political or religious affiliation or intention.

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World Down Syndrome Day Essay Contest

2012-02-09T15:28:00.000-07:00

January 20, 2012 through February 14, 2012

World Down Syndrome Day Essay Contest for Middle School and High School Students.
One winner from Middle School (6th-8th grades), and one winner from High School (9th-12th grades) in Colorado will be selected from each of the following categories:

Individual – Student with Down syndrome
Essay Writing Prompt: How is my life just like yours?
Individual - Student without Down syndrome
Essay Writing Prompt: How my classmate, friend, relative with Down syndrome has positively enriched my life.
Collaborative – 2 Friends – one with Down syndrome & one without Down syndrome
Essay Writing Prompt: How is our friendship better because of Down syndrome?

Submit your essay online at: http://www.ucdenver.edu/academics/colleges/medicalschool/institutes/lindacrnic/Newsevents/Pages/EssayContest.aspx

GOOD LUCK!!

World Down Syndrome Day Essay Contest

Telemundo Denver Interview for One Year Sie Center Anniversary - by Carlos Rausseo

2012-01-31T17:41:00.000-07:00

http://www.youtube.com/watch?v=PlovsmjtSNg

Anna and John J. Sie Center for Down Syndrome One Year Anniversary

2012-01-31T17:20:00.001-07:00

The Anna and John J. Sie Center for Down Syndrome opened its doors to patients just a year ago. During that time the Sie Center has become the largest organization serving over 260 children with Down syndrome. Their team of multidisciplinary experts focuses solely on patients with Down syndrome. The Sie Center has served over 13% of children with Down syndrome under 21 residing in Colorado and has seen increased patient visits nationally including from Wyoming, Montana, Nebraska, Washington, California, and Florida.

The outstanding professionals at the Sie Center include nationally renowned experts dedicated to patient care...

Meet some of the Sie Center Staff:

Medical Director Francis James Hickey, M.D. renowned specialist in Developmental and Behavioral Pediatrics and his son, James

Senior Physical Therapist, Patricia C. Winders

Executive Director of Linda Crnic Institute for Down Syndrome Dr. Ed McCabe, Director of Education of Linda Crnic Insitute for Down Syndrome Patti McVay, Executive Director of Global Down Syndrome Foundation Michelle Sie Whitten

Program Coordinator, Dee Daniels

Assistant Professor, Dr. Kristen Jensen

Bioethics and Community Outreach, Associate Professor Dr. Linda McCabe

…and many more professionals with over 80 years of combined experience!!

Martin Luther King Day

2012-01-13T17:25:00.000-07:00

Dear Friends and Colleagues,

I have the privilege of working with people with Down syndrome and children and adults who are differently-abled. In our work to improve funding, research, medical care, education and understanding, it is very clear to me that our work is deeply rooted in the ideals of human and civil rights. If society or individuals do not see our children, our people, as human, what can we achieve? If people who are differently-abled are not seen as equals worthy of rights and participation, what can we achieve?

In honor of Martin Luther King Jr Day, I would like to remember his work, his beliefs, and his words that even today apply to our community of the differently-abled and their families.

We have taken poetic license with his quotes to highlight our population. Please join us in our first VIRTUAL MARCH advocating human and civil rights for people who are differently-abled by choosing your favorite Martin Luther King Jr. quote (for your picket sign :) ) and letting us know why that quote resonates with your own personal story.

Please know, we WILL be heard. And change, just like all those years ago, from Atlanta to Mississippi to Washington DC is in the air.

Sincerely and with much appreciation,
Michelle Sie Whitten, Executive Director, Global Down Syndrome Foundation

2012-01-13T14:06:00.000-07:00

"Letter from a Birmingham Jail [King, Jr.]"

http://www.africa.upenn.edu/Articles_Gen/Letter_Birmingham.html

Martin Luther King - I Have A Dream Speech - August 28, 1963

2012-01-13T11:15:00.001-07:00